WASHINGTON, D.C. – A resolution designating February 27, 2025, as “Rare Disease Day” passed the U.S. Senate by unanimous consent. The resolution was led by U.S. Senators John Barrasso (R-Wyo.) and Richard Blumenthal (D-Conn.).

The annual resolution recognizes the need to provide support and raise awareness for the more than 300,000 Americans living with rare diseases and disorders. Unfortunately, children account for a significant portion of those affected by rare diseases. The resolution also supports national and global research efforts to develop effective treatments, diagnostics, and cures for rare diseases.

“For folks living with a rare condition, it can often leave them feeling lonely and overwhelmed. Since my time as a doctor, it has been a priority of mine to help these patients find the treatments and support they need,” said Senator Barrasso. “Rare Disease Day recognizes our commitment to patients living with rare diseases. It also supports the need to expand access to life-saving treatments and invest in future cures. I am proud to join this bipartisan effort to recognize and support all Americans living with rare diseases.”

“I’m endlessly inspired by the resilience and strength of the many Americans battling rare diseases. This resolution honors their fight and reaffirms our commitment to raising awareness and working towards innovative research, treatments, and cures. I look forward to continuing working towards providing access to life-saving care and supporting those individuals living with rare diseases,” said Senator Blumenthal.

Co-sponsors of this resolution include U.S.  Senators Roger Marshall (R-Kans.), Amy Klobuchar (D-Minn.), Tim Scott (R-S.C.), Cory Booker (D-N.J.), and Roger Wicker (R-Miss.).

Full text of the resolution can be found here.

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